ThyroidStory.mivox.com
 
 
 
 
 
 





User login


Recommended Supplements


Latest Test Results

thyroidstory.mivox.com was started as a simple blog dealing with my new diagnosis of hypothyroidism. Topics include medical information about hypothyroidism, information about hypothyroid medications like levothyroxine (Synthroid) and Armour Thyroid, as well as natural supplements like Thyromine, vincopectine and various vitamins and minerals. The site has now expanded to include discussion forums where other hypothyroid patients can discuss their experiences with hypothyroidism, and share tips for what medications, supplements and weight loss strategies have worked best for them.
Submitted by Jul on Wednesday, 6 December, 2006 - 7:34pmTests & Test Results

I had my 2nd round of blood work taken on Monday with the new doctor. I've been on Armour 135 mg for over 5 weeks now.

I was on 90 mg Armour for 2 weeks when he authorized to increase it to 135 (90 in te morning and 45 in the afternoon). I did't have a blood test then as it had only been 2 weeks since my last and I told him I absolutely could not survive another day feeling the way I was.

Before going on Armour, these were my test results (having been on 75 mcg of Levothyroxine for 6 months - btw, when I was initially diagnosed with hypothyroidism, my TSH was 7):

TSH: 0.436 uIU/mL (range 0.350-5.500 - which he said he personally doesn't go by, he goes by the newer one)
T4: 1.36 ng/dL (range 0.61-1.76)
T3: 3.3 pg/mL (range 2.3-4.2)
Reverse T3: 493 pg/mL (range 90-350)
Thyroid Peroxidase (TPO) Ab: 1237 IU/mL (range 0-34)
Antithyroglobulin Ab: 119 IU/mL (range 0-40)

He said my body wasn't converting the T4 into the T3 because my T3 should be higher than it was with where my T4 was. That and my high reverse T3 meant I wasn't converting the T4 into T3 correctly). And of course my antibodies were extremely high so I got the hashi's diagnosis.

I felt really good for the first 3-4 weeks. But in the last week to week and a half, I noticed my heart rate had been increasing. It may have been since day one I don't know - I only started testing it really when I had this racing heart thing on Thanksgiving where my mom tried to take me to the ER but I refused and it eventually settled down). My resting heart rate before was in the 70s generally. But now it's high 80s and 90s. Some days it's well over 100. When it's that high, I sometimes feel it and it's very uncomfortable (heavy heart beat which I feel all over my body pretty much and out of breath) and other times I'm surprised when I do my random check because I didn't even notice.

I do not have any hyper symptoms other than this. Just the heart rate. I'm not anxious, jittery, etc.

I'm still fatigued some but not where I used to be. I'm mostly able to do things like go to the grocery store or do your basic household chores without wanting to die. My moods are much higher (though I admit the last few weeks they've been up and down but not extreme amounts like before). In other words, mostly I feel good.

But because of the heart rate thing, I expected my test results were not going to be good.

TSH: not even showing up
T4: 1.8 ng/dL (range 0.8-1.5)
T3: 9.3 ug/dL (range 2.0-4.9)

First, why are there different ranges than the first test? The test names are slightly different. I just noticed that. Hmmmm...

Anyway, obviously, my T3 is way high. My T4 didn't seem to increase in a very huge amount compared to my T3 but I admit to not understanding what all this really means very well.

He of course was very concerned about the TSH not showing up. He didn't even mentioned my T3/T4 results in the accompanying message he sent with the labs (they use web accounts to post all this which is really pretty cool - including email). Just that TSH not showing up is bad bad bad and could mean I would be losing calcium?

He said I'm to immediately switch to 45 mg in the morning and 45 mg in the afternoon even if I felt good where I'm at.

I sent him an email back and said I would make the switch but I was extremely concerned about doing so. I did terribly on 90 mg. I was finally feeling good again (though not perfect) and while I understand why I needed to decrease, that amount was a scary number for me considering how I felt before on it. I was barely getting out of bed (the first 3 days I did well on it and then reverted back to feeling bad for the remaining week and a half before we increased).

I had heard of people taking a T4 along with Armour which got rid of their heart rate problems. I asked him if that was something we could consider for me?

Looking at my test results, anyone have any advice on this? He wants me to come back in a month and be retested. My plan is to wait a week/two tops and see how I do. If I do horrible on it like I worry I will, then I'm not taking it the full month he wants. But if I'm dealing ok, then I will. But I'm really worried about this.

I know my heart rate staying elevated like this is not good but it's weird that none of the other hyper symptoms are presenting themselves if my T3 is so high and no TSH? Can someone help explain this to me a little better about what this means?

Jul

add new comment | previous forum topic | next forum topic | quote

Hmmm.
Submitted by mivox on Friday, 29 December, 2006 - 5:08am

Obviously, heart problems aren't something to mess around with. The idea of ignoring test results only really comes into play, IMO, when you're feeling good ... and your heart rate being that high doesn't really count as "feeling good" in my opinion.

Have you tried taking mineral supplements? One woman in a nother thread mentioned taking magnesium supplements helping a problem with her heart racing, and I know a lot of muscle function is affected by calcium as well. Trying a complete calcium-magnesium-potassium supplement might help out some.

I'll do some looking around online myself, but for now if I were you, I'd stick with the reduced dose until your heart gets back into normal resting range. That's pretty scary.

If you have the ability, you might also want to get a second opinion? I know the stories around here don't inspire the greatest faith in official medical opinions, but it never hurts to hear another point of view.

--------------
How to Use the ThyroidStory Site (Where & How to Post)
Technical Help For the Site (Please post your questions!)

reply | quote


It's been about 3 weeks I
Submitted by Guest on Friday, 29 December, 2006 - 4:44pm

It's been about 3 weeks I think since I posted this and in that time I was reduced again to 45 mg. I feel like death basically. And I had one complete emotional breakdown after about 2 weeks on the reduced dose. And I'm teary nearly 75% of the time. It's this constant emotional rollercoaster. But my heart rate has come down. However, if I take more than 45 mg, it goes back up. However, so does my mood.

I'm planning on talking to him next week about testing my adrenals. Someone on another site said my body isn't absorbing the Armour correctly because of my adrenals most likely. And the palpitations are a sign of adrenal problems so hopefully that's what the problem is.

I take a multi vitamin (Centrum) as well as selenium supplement but I really don't understand all this supplement business. Many are getting recommended to me but I've got a list of about 15! It's just too much I think. A little overwhelming.

And this guy was my 2nd opinion. :) It took forever to find him. I'm giving him until mid to late spring to get me feeling better again and then I'll be looking once again I guess. Most recommended doctors I found in my area didn't take insurance which I cannot do unless I'm just at death's door. I feel like I am but I know I'm not. :)

Thankfully I have a very understanding boss who so far hasn't fired me for constantly calling in sick and being completely useless lately. But if this doesn't turn around soon, though, I fear sometimes I'll lose my job. :(

Thanks for the reply! What I really am interested in knowing if you happen to know or find it when searching is if it's really dangerous to have the TSH not show up. Some people are telling me it's normal on Armour. But I haven't been able to come up with anything "official" anywhere stating that and my doctor isn't likely going to just take the word from some internet posters. ha ha

reply | quote


Sorry, that was me above.
Submitted by Jul on Friday, 29 December, 2006 - 4:47pm

Sorry, that was me above. Forgot to log in. :)

reply | quote


That's a problem ...
Submitted by mivox on Friday, 29 December, 2006 - 11:04pm

Because Armour is out of patent, it's not a high profit medication, so there are virtually no clinical studies being done on it. Pretty pathetic, but true: The studies follow the money like everything else.

In my case, I was taking 120mg Armour, and my heart rate and blood pressure were fine, and the doc STILL insisted on dropping my dose, because my TSH was down to 0.035 (almost invisible). I felt great! Lucky for me, I still feel fine on 105mg/day, and the doc's happier with my test results at this dose...

With an elevated heart rate like yours though, there's definitely something going on that needs to be figured out. Good luck with the adrenal tests! Hopefully that'll make a big difference for you!

--------------
How to Use the ThyroidStory Site (Where & How to Post)
Technical Help For the Site (Please post your questions!)

reply | quote


Lori's Latest Labs
Submitted by Guest on Saturday, 20 January, 2007 - 10:54pm

I started on Armour six months ago and am currently at three grains...and haven't felt this good in a very long time. My doctor is thankfully not a numbers guy; had he been he would have prescribed only a very low dose of Armour. Below are my latest numbers, which he's not thrilled about, but he's letting me stay at three grains for the time being--until we get the Iodine test results back.

TSH: 0.01 (0.40 - 5.50)
Free T4: 1.5 (0.8 - 1.8)
Free T3: 424 (230 - 420)

reply | quote


THYROID,
Submitted by Guest on Thursday, 3 May, 2007 - 12:03am

HI,
I'M WRITING THIS LETTER IN HOPE THAT MAYBE SOMEBODY CAN HELP ME.I'VE BEEN SEEING MY FAMILY DOCTOR FOR ABOUT THIRTY YEAR'S, AND HE GOT REALLY SICK AND HAD TO GO INTO THE HOSPITAL AN HAVE SURGERY,SO I NEEDED TO SEE ANOTHER DOCTOR.FOR MY THYROID TEST.HE GAVE ME THE PAPER WORK FOR THE LAB WORK TO BE DONE.THE THYROID TEST WERE BACK IN ABOUT FOUR DAY'S.I WENT IN TO SEE HIM BUT HE HAD NO OPENING'S THAT DAY.SO HE TALKED WITH ME FOR ABOUT TEN MINUTES.HE TOLD ME THAT HE SEEN MY LAB TEST RESULTS ON MY THYROID AND SAID THAT MY THYROID WAS WAY,WAY,TO HIGH.I'M ON THYROID 2G.ONE EVERY MORNING.SO I ASKED HIM WHAT I SHOULD DO AND HE SAID JUST KEEP TAKING YOUR THYROID AS YOU ARE FOR NOW AND I'LL SEE YOU ON YOUR APPOINTMENT DAY.WITCH IS STILL SEVEN DAY'S AWAY.AND GAVE ME MY PAIN MEDICINE.I'VE BEEN SEEING THIS DOCTOR FOR ABOUT THREE MONTH'S NOW.I JUST HAVEN'T BEEN FEELING WELL WITH MY THYROID,I JUST DON'T KNOW WHAT TO DO OR THINK OF WHAT THIS DOCTOR TOLD ME TO DO.I REALLY DON'T THINK THAT I SHOULD STILL TAKE MY THYROID MEDICINE IF MY THYROID IS WAY HIGH TAKING IT NOW. I WANT TO THANK YOU FOR TAKING THE TIME TO READ MY LETTER EVEN IF YOU CAN'T HELP.THANK YOU AGAIN VERY MUCH. MRS BARBARA NIMAN,

reply | quote


Re: Latest Test Results
Submitted by Guest on Monday, 7 January, 2008 - 1:02am
Jul wrote:

I had my 2nd round of blood work taken on Monday with the new doctor. I've been on Armour 135 mg for over 5 weeks now.

I was on 90 mg Armour for 2 weeks when he authorized to increase it to 135 (90 in te morning and 45 in the afternoon). I did't have a blood test then as it had only been 2 weeks since my last and I told him I absolutely could not survive another day feeling the way I was.

Before going on Armour, these were my test results (having been on 75 mcg of Levothyroxine for 6 months - btw, when I was initially diagnosed with hypothyroidism, my TSH was 7):

TSH: 0.436 uIU/mL (range 0.350-5.500 - which he said he personally doesn't go by, he goes by the newer one)
T4: 1.36 ng/dL (range 0.61-1.76)
T3: 3.3 pg/mL (range 2.3-4.2)
Reverse T3: 493 pg/mL (range 90-350)
Thyroid Peroxidase (TPO) Ab: 1237 IU/mL (range 0-34)
Antithyroglobulin Ab: 119 IU/mL (range 0-40)

He said my body wasn't converting the T4 into the T3 because my T3 should be higher than it was with where my T4 was. That and my high reverse T3 meant I wasn't converting the T4 into T3 correctly). And of course my antibodies were extremely high so I got the hashi's diagnosis.

I felt really good for the first 3-4 weeks. But in the last week to week and a half, I noticed my heart rate had been increasing. It may have been since day one I don't know - I only started testing it really when I had this racing heart thing on Thanksgiving where my mom tried to take me to the ER but I refused and it eventually settled down). My resting heart rate before was in the 70s generally. But now it's high 80s and 90s. Some days it's well over 100. When it's that high, I sometimes feel it and it's very uncomfortable (heavy heart beat which I feel all over my body pretty much and out of breath) and other times I'm surprised when I do my random check because I didn't even notice.

I do not have any hyper symptoms other than this. Just the heart rate. I'm not anxious, jittery, etc.

I'm still fatigued some but not where I used to be. I'm mostly able to do things like go to the grocery store or do your basic household chores without wanting to die. My moods are much higher (though I admit the last few weeks they've been up and down but not extreme amounts like before). In other words, mostly I feel good.

But because of the heart rate thing, I expected my test results were not going to be good.

TSH: not even showing up
T4: 1.8 ng/dL (range 0.8-1.5)
T3: 9.3 ug/dL (range 2.0-4.9)

First, why are there different ranges than the first test? The test names are slightly different. I just noticed that. Hmmmm...

Anyway, obviously, my T3 is way high. My T4 didn't seem to increase in a very huge amount compared to my T3 but I admit to not understanding what all this really means very well.

He of course was very concerned about the TSH not showing up. He didn't even mentioned my T3/T4 results in the accompanying message he sent with the labs (they use web accounts to post all this which is really pretty cool - including email). Just that TSH not showing up is bad bad bad and could mean I would be losing calcium?

He said I'm to immediately switch to 45 mg in the morning and 45 mg in the afternoon even if I felt good where I'm at.

I sent him an email back and said I would make the switch but I was extremely concerned about doing so. I did terribly on 90 mg. I was finally feeling good again (though not perfect) and while I understand why I needed to decrease, that amount was a scary number for me considering how I felt before on it. I was barely getting out of bed (the first 3 days I did well on it and then reverted back to feeling bad for the remaining week and a half before we increased).

I had heard of people taking a T4 along with Armour which got rid of their heart rate problems. I asked him if that was something we could consider for me?

Looking at my test results, anyone have any advice on this? He wants me to come back in a month and be retested. My plan is to wait a week/two tops and see how I do. If I do horrible on it like I worry I will, then I'm not taking it the full month he wants. But if I'm dealing ok, then I will. But I'm really worried about this.

I know my heart rate staying elevated like this is not good but it's weird that none of the other hyper symptoms are presenting themselves if my T3 is so high and no TSH? Can someone help explain this to me a little better about what this means?

Jul

sounds to me your hyper even tho you dont have ,the other syptoms,and maybe adrenal fatigue?maybe test cortisol levels by 4x saliva tests ,,but this sounds more hyper..

reply | quote


Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.


Search
 
Web ThyroidStory






Related Sites & Products


Support ThyroidStory!

Donate towards my web hosting bill!

Your donations go directly
to pay our hosting bills!



Terms of Service | Privacy Policy | Copyright Notice | Contact Us | SUBSCRIBE!