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Latest tests are in ... Looking good!

thyroidstory.mivox.com was started as a simple blog dealing with my new diagnosis of hypothyroidism. Topics include medical information about hypothyroidism, information about hypothyroid medications like levothyroxine (Synthroid) and Armour Thyroid, as well as natural supplements like Thyromine, vincopectine and various vitamins and minerals. The site has now expanded to include discussion forums where other hypothyroid patients can discuss their experiences with hypothyroidism, and share tips for what medications, supplements and weight loss strategies have worked best for them.
Submitted by mivox on Wednesday, 4 October, 2006 - 7:50pmMy Story | Test Results

Almost exactly a year after my first blood tests (Sept 27, 2005 – Sept 29, 2006), I went in for the most recent round. I've been feeling pretty good on my current prescription (105mg Armour Thyroid: 60mg early afternoon, 45mg at bedtime), plus Thyromine and vitamins in the morning.

So, I was optimistic that my blood levels had dropped enough from last time (when my T4 and T3 was acceptable to the PhA, but my TSH was 10Xs lower than the bottom end of normal, and she wasn't comfortable with that, so she lowered my dose from 120mg/day to 105mg), that the doc would be willing to renew my current prescription.

So, without further ado, here's my latest labs:

September 2006
Labs: (29 Sept.)
TSH: 0.605 uIU/mL (normal: 0.350–5.500)
T4, Free (Direct): 0.84 ng/dL (normal 0.61–1.76)
Triiodothyronine, Free, Serum (T3): 3.0 pg/mL (normal: 2.3–4.2)

There aren't any Vitals to go with this round, because my clinic bill is rather large, and the PhA & I agreed that if my labs were good and I was feeling good, she'd just renew the prescription without me having to go in to see her.

So, it only took a year, a lot of research, and more than a couple persistent requests on my part (to try Armour instead of generic Levothyroxine), and I'm finally feeling good AND have established level with all my blood tests that's well within "normal" by any standard.

Not to say I'm going to abandon this site now that my personal trials seem to be temporarily done ... I plan to keep reading books and doing research, and trying different vitamins and supplements, and a friend of mine even threatened to make me start exercising with her on a regular basis! ;-)

Stay tuned!

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supplements
Submitted by Guest on Wednesday, 29 November, 2006 - 12:23pm

Did your doctor think it was okay to take the thyromine supplement? Also, what exactly are the dangers of having your TSH so low? I have Hashimoto's, so having a very low TSH would be good for me (I think.) I am going to my doctor in a few weeks and would like to go armed with good information and good questions to ask based on this info. I am still very tired and have other symptoms, so I do not think the 100 mcg levothyroxine is the correct dose, but my blood tests have never been very indicative of how I have been feeling so I am afraid he will not change my prescription based soley on my test results. Any ideas?

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Awww ... Sorry!
Submitted by mivox on Friday, 29 December, 2006 - 11:40pm

Obviously there's something wrong with my notification settings for the site ... I didn't even know there was a comment on this post until today, and it was a month ago!

OK ... so to answer your questions: I didn't specifically mention the Thyromine brand supplement, but I have previously mentioned taking selenium and herbal supplements, and she didn't have a problem with that. And since the glandulars in the Thyromine don't have "active" hormone content, they shouldn't interfere with your medication anyway.

Off the top of my head ... it's the same question I ask everyone who complains about not feeling good on synthetic meds, despite good test results: Have you tried Armour, and would your doctor be willing to let you try it if not? It made a major difference in how I felt, even though my initial dose was too low. Once I got the Armour adjusted properly, I felt like a whole new person.

And if your Dr. refuses to try Armour, I'd recommend either trying a natural glandular supplement like the Thyromine, to see if the additional so-called inactive dessicated thyroid might not give you the 'boost' you need ... or (even better) find a different doctor who IS willing to let you try different medications!

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lab tests are in...looking good!
Submitted by Guest on Wednesday, 3 January, 2007 - 2:52pm

I might have written the nov. comment, sounds just like me but I have no memory of it,such is the hypothyroid life. I went to my dr. and he subscribed amour based on my symptoms and lab results from sept ( I think I remember seeing .1 TSH when he showed me the labs). He also did a FNA because ultrasounds of my goiters are not clear. I am on 1 gr. armour now, I need to call him in 1 month. So far, its been almost 2 weeks, I feel better when I am awake but crash in the afternoons, the same as when I was on 100 mcg of levothyroxine, but I have also been on vacation ( I work at a school, so we are on winter break). After all that, my question is, should I take my meds with coffee? I have been in the morning, just a splash of milk and 1/4 -1/2 tsp of sugar, should I wait an hour to drink coffee even? Any info would be appreciated.

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break up your dose?
Submitted by mivox on Thursday, 4 January, 2007 - 12:26am

If you take your whole Armour dose in the morning, it's very common to have an afternoon crash. Because of the short "half life" of the T3 in the body, most people find they have better all-day energy levels by splitting their medication into a morning and afternoon dose.

Have you tried that? If not, it could help ... get a pill splitter and take 1/2 grain at your usual morning time, and then the second 1/2 grain in the afternoon when you first notice yourself getting tired.

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armour dosage
Submitted by azmom on Sunday, 7 January, 2007 - 12:42am

Will try splitting. I specifically asked the pharmacist about dose splitting and he said no, didn't need to. Shows you how much he knows!
I have been on the armour for 2 weeks and have good news and bad news: the good news is I am now clear headed enough to see how dirty and disorganized my house has become, the bad news is my energy level is not where it should be to clean my house in one shot, so I am doing it in segments.
Does anyone else have allergic reactions to foods in the form of skin flare ups, itchiness and changes in skin texture? I experienced serious PMS symptoms the first two months on levothyroxine, then the 3rd month, Halleleuia!!, no periods. As I am 49, the dr. thinks it is menopause, I don't really care, I am happy to have one less thing to worry about. So I have the ovarian cramps, fibrocystic breasts, etc again, but I hope it goes away after 1 or 2 mos without a return of my period.
While looking at my neck on the ultrasound, the dr. mentioned he thought some nodules looked hyperthyroid. Could that explain the weird mix of symptoms?

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hi all its antoinette(to mivox and all)
Submitted by Guest on Monday, 19 February, 2007 - 4:12am

hi mivox and all, just checkin in to see how everyone is doing and to say thanx for the support while i was hypo. i have been on armour for 1 year now and feeling great! my tsh is alittle supressed from what my doc.says but she said if im doin fine theres no need to change anything, my levels are all in normal range im on 150mg daily but im splitting my doses since im up all day and work graveyard i weighed 143 at 5"5 when i was diagnosed now im 130-35 it was a long rough road for me the 1st year but from the support from yall i was pateint im due to see my doc.in july for more follow up tests so people strating on armour split your dose and be pateint:)good luck.

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Congrats!
Submitted by mivox on Tuesday, 20 February, 2007 - 12:40am

Great to hear from you, and even better to hear you're doing well! I've been holding pretty steady myself (including my weight ;-\ ), and I feel kinda bad for letting the site kind of get neglected ...

... but thanks so much for checking back in! Keep us posted when you see the doctor next, OK? :-)

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(antoinette here)
Submitted by Guest on Thursday, 1 March, 2007 - 4:23am

hey mivox,i have a question have you heard of anyone having there tsh alittle supressed and is that bad? my doc. says mine is alittle supressed but i dont feel hyper,but i do have heart palps from time to time, hot flashes but could just be from me being a female(hot flashes)u think there anything to worry about? with my tsh bein alittle supressed?dont wanna drop dead or sumthin,,i heard that some people can get the tsh supressed while takin armour

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no problem, afaik
Submitted by Guest on Saturday, 3 March, 2007 - 10:24pm

From what I understand, it is very common to have a suppressed TSH level while on Armour. Opinions vary as to whether that's a problem. Basically, Drs who are used to dealing with Synthroid and other synthetic meds say it's a problem, while Drs who are used to prescribing Armour say it isn't a problem at all.

My hunch is that suppressed TSH would be a problem with synthetic meds, because you're only getting one or two hormones from your meds, so you still want the thyroid doing something to produce everything else ... but with Armour it's not a problem because Armour actually contains everything your thyroid produces normally.

That's just my hunch though. :-)

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(mivox here)
Submitted by Guest on Saturday, 3 March, 2007 - 10:26pm

For some reason, I can't actually log in to the site here at all ... I'm trying to figure out why right now.

Is anyone else having a problem with their regular login not working?

[added: well, I seem to have it fixed now ... it was a problem introduced by an update of the PHP version installed on the server ... lord that was a pain! haha]

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DANGER with THYROMINE
Submitted by Guest on Tuesday, 27 March, 2007 - 3:01pm

Please be careful with thyromine. Last week I started taking it. I must have had an allergic reaction to it. What started as a minor jaw pain resulted in all-out left-side facial swelling, numbness around my lower left neck and half of my mouth - not to mention extreme shouting pain. My face is still partially numb affecting the salivary glands and nerves in my face. I went to my family doctor but was too ashamed to tell him I tried this crap. Tommorrow I'm going to a specialist who I will tell - as well as to ask him to send this junk to a lab for testing of "unknown metals and materials" in thyromine. After that, and with all the pain I've exprienced and swelling with this stuff, you can bet our attorney will get involved. I'm like evryone else with thyroid problems - it's frustrating. But I've learned my lesson with trying to get these quick-fix, slick marketing products that obviously has really, truly, made me sick. It's not worth my health anymore. Whoever tries this stuff - BEWARE

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Umm ... that's very odd.
Submitted by mivox on Wednesday, 28 March, 2007 - 12:13am

How do you know it was definitely the Thyromine? Especially if you didn't even tell your doctor about it?

I've been taking it for over six months with no problems and many noticeable benefits ... and I've never heard of anything that causes an allergic reaction on only one side of someone's face, unless it's some kind of foreign material that got into open dental work or some kind of break in the skin.

Honestly, I hope you do find out whatever is causing your problems, but I really doubt it was the Thyromine.

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Doses
Submitted by MrsJones on Monday, 30 April, 2007 - 8:50pm

Hello Im reading alot about having a morning dose and an afternoon dose of meds, im on Armour, and my best friend is on Levo, and we are both notice that at about noon we start to feel it wearing off, are you just cutting your pill in half? Can you take it with food, or are you taking the afternoon dose on an empty stomach? I feel so lost with this disease, this place is an excellent resourse, Thanks again for everything!

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Is this TSH high?
Submitted by Guest on Thursday, 17 May, 2007 - 4:21am

I just got results back from the doctor today...I had been feeling sluggish for a while and had signs of potential thyroid issues in the past, finally it seems to have kicked in...so my TSH is 185 and the T4 is 0.44. Question is, has anyone ever heard of a TSH that high? My doctor was a bit shocked but not too concerned, saying it can be controlled with Synthroid.

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Is this TSH high?
Submitted by Guest on Thursday, 17 May, 2007 - 4:23am

I just got results back from the doctor today...I had been feeling sluggish for a while and had signs of potential thyroid issues in the past, finally it seems to have kicked in...so my TSH is 185 and the T4 is 0.44. Question is, has anyone ever heard of a TSH that high? My doctor was a bit shocked but not too concerned, saying it can be controlled with Synthroid.

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reply
Submitted by Guest on Sunday, 27 May, 2007 - 6:39pm

That does seem a little high. I had a tt recently and when I went hypo for my rai treatment, my tsh was only 95. You may have to be on a high dose on thyroid medicine like I am.

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There aren't any Vitals to
Submitted by Guest on Tuesday, 19 June, 2007 - 7:22am

There aren't any Vitals to go with this round, because my clinic bill is rather large, and vagonchik the PhA & I agreed that if my labs were good and I was feeling good, she'd just renew the prescription without me having to go in to see her.

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Hello , need help with a question?
Submitted by Guest on Sunday, 13 April, 2008 - 6:27pm

I have had hypo-thyroidism for a year now. My doctor put me on synthroid 75mcg but I cannot seem to lose any weight. no matter how much I exercise or how little I eat, and I try and eat right, I cannot lose this disgusting weight. I ballooned up and for someone that was in good shape this weight on me is making me feel horrible about myself. Would it be okay to take Thyromine and my synthroid? Because I have been desperate and my doctor says my thyroid is OK. Within normal range, but I still feel tired, sweaty at times and my heart some times does palpatate? Can you please help!

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